Resources
Please review the list of resources below to support you and your family.
Hospitals
Local Support Groups
- Upstate Heart Moms – This group of heart moms is based out of Spartanburg, SC and meets monthly for fun and support.
Connection Sites
- CaringBridge – Update family and friends on you/your child’s progress.
- CarePages – Update family and friends on you/your child’s progress. Remember to choose MUSC Kids as your sponsor!
Heart Kid Camps
Medical Sites
- Medical University of SC – Children’s Hospital – MUSC is home to South Carolina’s only Pediatric Cardiothoracic Surgery program
- The Cove Point Foundation – Offers a listing of congenital heart defects with interactive graphics. Also includes common procedures and types of corrective surgery.
- The Mayo Clinic
- National Heart Lung and Blood Institute
- Association for European Paediatric Cardiology – European resources and information.
- American Academy of Pediatrics
Other Support Organizations
- Adult Congenital Heart Association – Support and resources for adults living with CHD.
- Saving Little Hearts – Resources for families in Tennessee.
- Little Hearts – Support for families in the Connecticut and surrounding areas.
- Congenital Heart Information Network – National CHD organization.
- Hope for ARVD – Blog for adults with ARVD (Arrhythmogenic Right Ventricular Dysplasia).
- Children’s Heart Foundation – Foundation dedicated to the research, diagnosis, and prevention of congenital heart defects.